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incredABLE welcomes RQIA decision to stand down cease and desist action

incredABLE has welcomed confirmation from the Regulation and Quality Improvement Authority (RQIA) that it is standing down the cease and desist action previously due to take effect on 31 December 2026, allowing the organisation’s Short Breaks services to continue operating while wider discussions on regulation progress.

The decision follows a period of significant engagement between incredABLE, families, elected representatives, statutory agencies and regulatory bodies regarding the regulatory framework applicable to community-based short break services for adults with a learning disability and autism.

Nigel Hampton, Chief Executive Officer of incredABLE, said: “The announcement is very welcome news for the individuals and families who rely on our Adult Short Breaks services and for the staff who work so hard to deliver them.

“Over recent weeks we have witnessed an extraordinary level of support from families, carers, elected representatives, partner organisations and members of the wider community. Their advocacy has highlighted just how important community-based short break services are in helping people with a learning disability and autism lead fulfilling lives, develop independence, form meaningful relationships and access the same opportunities many of us take for granted.”

“I would also like to acknowledge the constructive engagement that has taken place with RQIA, the Department of Health, the Southern Health and Social Care Trust and political representatives from across the spectrum. It is encouraging that there is now a shared recognition of the need to identify a proportionate and appropriate regulatory framework that reflects the nature of modern community-based short break services.”

While welcoming the development, incredABLE has stressed that the wider issue remains unresolved.

The Department of Health has indicated its intention to undertake a review of existing residential care regulations and standards to consider how short break and respite services can be appropriately reflected within the regulatory framework. The organisation believes this work will be crucial in providing long-term clarity and certainty for service providers and the individuals and families who depend upon these supports.

Mr Hampton added: “While this represents a significant and positive step forward, we believe it is important to exercise a degree of caution. There remains important work ahead to establish a sustainable regulatory framework that safeguards high-quality services while recognising the unique nature of community-based short breaks.

“We remain committed to working constructively with all stakeholders to help shape a solution that protects individuals, supports families and ensures the continued availability of these much-needed services.”

“This outcome demonstrates what can be achieved when families, communities, service providers and decision-makers come together with a shared commitment to finding practical solutions. We look forward to continuing those conversations in the months ahead.”

incredABLE confirmed that it will continue to engage fully with regulators, government departments and health and social care partners while maintaining its focus on delivering safe, high-quality and meaningful short break opportunities for adults with a learning disability and autism.

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